Endo, S.M.U. (Save My Uterus!), Self-Care & Wellness

The ULTIMATE List of Support Groups for Endometriosis And Mental Health

~ Updated 10:00pm Friday 25th Octobert 2019 ~

Hey Queen!

Thanks for checking in 🙂 

If you’ve been following me lately, you’ll probably know I’ve recently taken a bit of a break from the blog and social media.

One of the things I was starting to get a little overwhelmed with was the number of messages I was getting requesting support each day. 

Hey Queen!

Thanks for checking in 🙂

If you’ve been following me lately, you’ll probably know I’ve recently taken a bit of a break from the blog and social media.

One of the things I was starting to get a little overwhelmed with was the number of messages I was getting requesting support each day. 

When I first started, I DID want to be a support person, but the thing with Endo is that it’s often dark, messy and unpleasant. 
Not being qualified or having the right experience/skills to answer the messages I was getting, it started to really affect my mental health.

After taking some time to reflect, I’ve realised the best way I can help the MOST people is to focus on what I’m doing with the blog etc. 
This means I can dedicate most of my time to researching, (and sharing it with you), creating feel-good content and working hard to make sure I’m taking care of myself so I can show you how to as well.

In a recent podcast with Russell Brand and Brené Brown, B talks about a study she did on people, trying to identify what makes people compassionate. 
She interviewed the MOST compassionate people she could find, (monks, etc.) and found they all had one thing in common – strong boundaries

I’d really like to be able to say I’m one of the most compassionate people out there, so I’ve decided to be proactive with my self-improvement and get clear with my boundaries – for the first time ever. 

So, while I may not be able to be your personal on-call support person, I can point you in the direction of where to find it. 

I’ve also created a letter to my old-self – the girl stuck in the worst Endo flare ever and what I now refer to as ‘The Year From Hell’.

It may not apply to you and your circumstances, but if you can read it with an open-mind, (remembering that it’s a letter to myself), you might be able to take something away from my experience that can help you too. 
You can read the letter below

http://bit.ly/BBsEndoBBsLETTER

Finally, I’ve created a list of things that you can easily listen to or watch from bed, that have all really helped me on my Endo (and mental health) journey, which you can find here http://bit.ly/BBsEndoSELFHELPLIST.

BB Tip: In the mental health/crisis support section (below) you’ll find some of my go-to methods for dealing with my anxiety/depression which are often triggers for my physical pain. 

Endometriosis Support

There is a TONE of Endometriosis support groups on Facebook, filled with women going through the same stuff as you. 

Simply type “endometriosis support” to Facebook search and you’ll find both global and local Endo groups, sorted specifically for you.

Below, I’ve listed some other resources and websites, as well as some of my favourite Facebook groups. 

Global

endometriosis.org
Endometriosis.org has made a list of support groups around the world, including:

  • Australia
  • Austria
  • Barbados
  • Belgium
  • Canada
  • Denmark
  • Finland
  • France
  • Germany
  • Ghana
  • Hungary
  • Iceland
  • India
  • Ireland
  • Israel
  • Italy
  • Japan
  • Mexico
  • Netherlands
  • New Zealand
  • Nigeria
  • Norway
  • Poland
  • Portugal
  • Puerto Rico
  • Romania
  • Spain
  • Sweden
  • Switzerland
  • Trinidad and Tobago
  • Turkey
  • United Kingdom
    AND
  • United States

Access the full list here http://bit.ly/BBsEndoGLOBALSUPPORT1

endo-resolved.com
endo-resolved.com has made a different list of support groups around the world. 
The places that weren’t listed in the list above are:

  • Argentina
  • Brazil
  • Malta
  • Singapore
    AND
  • South Africa

http://bit.ly/BBsEndoGLOBALSUPPORT2

My Endometriosis Team
My Endometriosis Team is an online support group, which you can access both by app and website. 
It’s developed by My Health Teams who have created over 33 apps for 33 different conditions. 
You can access the one for Endo, (My Endometriosis Team) below, to sign-up via email or facebook. You’ll also find links to download the app on iPhone or Google Play.

http://bit.ly/BBsEndoMYENDOTEAM

All About Annie
Annie was the very first queen I found on Facebook to be speaking publicly about her Endo journey.
She’s based in New Zealand and has a support group on Facebook, called All About Annies Endometriosis Support Group

Loving blogs? 
This post from Popsugar is from a girl who talks about her want to find more natural treatments (in combination with medicinal ones of course) and how the internet helped her. 

She’s also listed some of her favourite endo bloggers at the very end. 
Read the full article here http://bit.ly/BBsEndoPOPSUGARENDOSUPPORT

Australia

Endometriosis Australia
Endometriosis Australia have created list of support groups around Australia, which you can view here, http://bit.ly/BBsEndoENDOAUSTRALIASUPPORT

They also have a Facebook discussion group, which is not a support group, but a great positive-space for helpful tips, news, research and more.
http://bit.ly/BBsEndoENDOAUS

Endometriosis Support Australia
This was one of the very first support groups I found on Facebook and has been a god-send for me. The queens in here have given me support when no one else would, helpful advise that was actually useful and has even given me a friend for life, Eliza, who has started her own Endo page, @wild_endo_flower.
http://bit.ly/BBEndometriosisSupportAustraliaFBGROUP

UK

Endometriosis UK
Ph: 0808 808 2227 (for operating times, click here: http://bit.ly/BBsEndoENDOUKHOURS)

endometriosis-uk.org has created a list of Endometriosis support groups available across the UK, which you can find at the link here, http://bit.ly/BBsEndoENDOUKSUPPORT

Endometriosis Revisited
I’m not 100% certain, but I’m 99% sure this page is run by the endo-resolved.com site I mentioned earlier in the Global category.
http://bit.ly/BBsEndoENDOREVISTEDFBGROUP

US

Speak Endo
speakendo.com has listed a number of endometriosis support organisations, across the US. You can read the full article here, http://bit.ly/BBsEndoSPEAKENDOSUPPORTUSA

Mental Health/Crisis Support

Global

You can check out the Beyond Blue website listed below for a bunch of resources for dealing with and supporting someone with depression and/or anxiety.

I also like to use box breathing when I’m anxious, (or in pain) which is a super effective and easy breathing technique/meditation that’s great for a quick reset.
You can find the exact meditation I originally found, (and still) use below:

https://insig.ht/QvMOIYdF4X

I’ve also listed some of my favourite Instagram accounts for mental health, (in no particular order).  With everything from cute and relatable illustrations to tips/tricks and remedies, there’s bound to be something in here that tickles your fancy 😉 

@anxieteawithchillyshttp://bit.ly/BBsEndoANXIETEAWITHCHILLIESIG
@breakingtaboohttp://bit.ly/BBsEndoBREAKINGTABOOIG
@decade2doodleshttp://bit.ly/BBsEndoDECADE2DOODLESIG
@onehealthynation http://bit.ly/BBsEndoONEHEALTHYNATIONIG
@littlearthlingshttp://bit.ly/BBsEndoLITTLEARTHLINGSIG
@theblurtfoundationhttp://bit.ly/BBsEndoTHEBLURTFOUNDATIONIG
@recipesforselflovehttp://bit.ly/BBsEndoRECIPESFORSELFLOVEIG
@positivelypresenthttp://bit.ly/BBsEndoPOSITIVELYPRESENTIG
@anxiety_wellbeinghttp://bit.ly/BBsEndoANXIETYWELLBEINGIG

Australia

Health Direct Australia has listed a number of mental health resources available in Australia. With options for young, old, internet and phone – there’s something for everyone here! 
http://bit.ly/BBsEndoHEALTHDIRECTSUPORT

It’s already featured in the article above, but I just wanted to jump on and say I have personally used e-headspace on a number of occasions, and when you get someone you click with – it can be a god-send! 

If you’re 25 or under, I’d really recommend keeping their details handy, which are listed on their website below

http://bit.ly/BBsEndoEHEADSPACE

Just a quick note, now I’m no longer 25 or under, (wahh) my first preference next time I need a chat will probably be either Beyond Blue or Lifeline, which are listed in the above article, but I’ll list them below to make it easy for you 🙂

Beyond Blue
Ph: 1300 22 4636 
(24 hours, 7 days a week)
http://bit.ly/BBsEndoBEYONDBLUE

Lifeline
Ph: 13 11 14 
(24 hours, 7 days a week)
http://bit.ly/BBsEndoLIFELINE

UK

time-to-change.org has listed a number of mental health and crisis support services across the UK. Read the full list below
http://bit.ly/BBsEndoTTCSUPPORT

US

mentalhealth.gov have listed some support services available across the US. See the list below
http://bit.ly/BBsEndoSUPPORTUSA

Well, there you go Queen!

While I hope you don’t have to use this list any time soon, it’s really nice to now they’re there huh?

Sending love, hugs and pain-free-days

❤ BB xx

P.S.
What are some of YOUR favourite support groups? Do you prefer apps, fb groups or someone you can call?
Comment below and let me know 🙂 

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